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Julian’s Dream Team

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Current Team Members:
17
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$3,565

Raised of $2,500

Our Story

On January 19, 2026, we welcomed our sweet baby boy, Julian, into the world. He is a happy, healthy little boy who instantly filled our lives with so much love and joy.

Just six weeks later, our world changed when we received a heartbreaking phone call from our pediatrician. Julian’s California newborn screening had come back positive for Adrenoleukodystrophy (X-ALD), a rare genetic disorder that can affect the brain and adrenal glands and could be fatal if not treated. 

Hearing those words was devastating. Since then, we have spent countless hours researching, meeting with specialists, and learning everything we can about this disease. While Julian is currently asymptomatic, happy & healthy, the road ahead is uncertain. If the time ever comes, Julian may need life saving treatment — either a bone marrow transplant or gene therapy. Whatever we may face we are determined to do so with strength, hope, and love for our little boy.

One thing has become incredibly clear to us: ALD desperately needs more research, awareness, and support. Early detection through newborn screening is giving Julian a chance and continued research can help improve treatments and outcomes for so many children and families facing this diagnosis.

Please consider joining our team or donating to support ALD research in support of Julian. 100% of funds raised from the 2026 virtual 5K will be donated to the University of Minnesota's Leukodystrophy Center for ALD research. The goal is to provide critical funding to launch imperative ALD research projects. Thank you for standing with Julian and our family. 💙

Love, 

Lindsey, Justin, & Julian 

 

Top Donors

$3,565 Raised By 41 Donors

$250 in support of Donald Collins
$250 in support of Erica Clark
$300 in support of Julian
$100 in honor of Alexandra Peckham
$100 in support of David Sengmany
$100 in support of Diana Chick
$100 in support of Diane Kennedy
$100 in support of Frances craig
$100 in support of Julian!!
$150 in support of Kelsey Kobli
$100 in support of Marissa Torres
$150 in support of Michelle Armand
$100 on behalf of Shane McCarthy
$100 in support of Stacy Flanery
$100 in support of Steven Ridderman
$125 in support of Susan Brubaker
$100 in support of Tricia & Andy Fox
$75 in support of Kara Gil
$50 in support of Ally Falk
$50 in support of Constance Holloman
$50 in support of Erika Ho
$50 in support of Jean Marie Alderink
$75 in support of Julian
$75 in support of Julian
$75 in support of Julian!
$50 in support of Julian’s Dream Team
$50 in support of Julie Parras
$50 in support of Kaylee Wiedeman
$50 in support of megan beach
$50 in support of Morgan Sacco
$50 in support of Rey Landau
$50 in support of shelby douglas
$55 in support of Kathleen Davies
$25 in support of Cyprian Edonkumoh
$25 from Anonymous
$25 in support of Marjorie Vaughan
$25 in support of Morgan Lebejko
$50 from Anonymous
$25 in support of TARA LEE
$25 in support of Tempestt Moyer
$10 from Anonymous

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